It has been a while since my last post and things have definitely changed. Over the last few months we have continued to chase this cancer. My tumor markers continued to go up even after a good PET scan so after more tests CT scans and MRI we have found more small metastasis. Although the other spots are either smaller or stable we have found new ones. I have stopped the xeloda and am no longer involved in a study. My new drug of choice is navilbean, this one has been a doosey, I have done so well with the other chemo therapies that I didn't think this would be any different and they had said the side effects were much more mild well since I continue to defy the norm it has not been easy. My white blood count dropped considerably which has always been a potential problem but I had held my own. Not this time so we had to discontinue treatment for a while to try to increase these WBC. Friday they gave me a neulasta shot which has not been a pleasant addition to my picnic. I don't go back for 2 weeks which I am incredibly grateful for since I would like to start to feel more like myself before I try again.
With regards to the rest of the gang as always they continue to be incredible. Brett has been amazing he gives me just the right amount of support. Since we try to keep Luke as unaffected as possible when he asks for kick ball, or something that would require some energy before I can say I can't or no. My mom, sister or Brett simply step in to take my place. Luke is such a brave little guy that he tries very hard to understand something that is just unimaginable for a 9 year old.
We will continue to fight together and take the set backs in stride.
Monday, March 31, 2008
We will not lose our spirit!
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9 comments:
Who needs the Final Four??
We have The Spring Break Port St. Lucie Kickball Tournament.
The Switzer's have been practicing hard in Atlanta and the team bus leaves bright and early Saturday morning.
So lace up your sneakers Luke! Ryan, Mazie and Malori mean business!!
Trini -
You and your family continue to be in my thoughts and prayers. Have a wonderful spring break w/ the Switzer's!
Take care,
Julie Rivard
Trini –
I’m not sure if you remember me, but I’m a friend of Terri’s (we worked together for years). I’ve been following your blog on a regular basis and Terri keeps me posted with updates. I just wanted to say that you have an amazing spirit, and I gain inspiration each time I read about your latest challenges. I admire your strength, courage and overall attitude as you continue through this journey.
And ... in case you were feeling a little bit nostalgic about Upstate New York, I'll let you know that the last of our snow melted only a week ago. We're hoping that it's done for the season.
Take care. My thoughts are with you!
Cindy (Hackel) Morris
Hey Trini,
Thanks for your new update - I ran into your mom but it's hard to ask how you're really doing when we're trying to act "normal".
Wow, you never know what to say here - that's why so many who read your blog are speechless! I'm not happy about your numbers but feel comforted knowing your strength and spirit is awesome! How blessed you are to have Brett, Luke and your family by your side lifting you up! You know we're always here if you need us :).
I have to tell you, your positive attitude shuts me right up whenever I'm "whining". (You already heard my "turning 40" whine) Yep, the whine is no more.
So Trini, continue focusing on one day at a time. If it sucks, know that tomorrow will be better. If not, at least a big smile from Luke will make you forget for a while. Have fun playing kickball! Stay strong and see you soon!
Much Love and Big Hugs, Doreen
Keep going Trini!! I think about you all the time - only good thoughts!
Anne, Colin & The kids....
Trini.
I continue to follow your progress and as always i pray for you and your family. You are so amazing with your attitude and bravery!!!
My entire family asks about you often and i talk to your aunt almost daily. Please know we are all praying for you. Hugs and kisses to you . Luke. Brett, your mom and dad. Denise
Trini:
I am a friend of your sister, Traci, and just wanted to say that I am up here in Atlanta praying for your recovery and strength for your entire family. Thank you for sharing your stories; they are truly inspirational...living each day fully and in the moment is exactly the lesson I need to take in now.
Much love to you,
Cathy Downey
Trini-
Remember me? Andrea (Sinnenberg) Wanat from Burnt Hills? Micky forwarded me your blog. I am sending positive thoughts and prayers your way. I also have a 9 year old (Alex) in third grade. (plus two other boys, Dylan and Jadon). It is a blessing every day to spend time with them and I know from your blog, how much you cherish your time with Luke. Keep the positive energy going. Think of how tough you were on the soccer field!
My husband, John Wanat, also sends his love. Thinking of you.
Andrea J. Sinnenberg Wanat
A friend from the past
Trini-
Wow, it's been a long time....
I was remembering the days I would go over to your house after school and how I thought it was so cool your parents would let you be there alone (you were apparently a little more mature than me:) and we would hang out and eat snacks and watch MTV.
I know that God is using you for a purpose and obviously part of that purpose is inspiring others. Your blog helps me realize what is important in life. We get so busy in the mundane and monotany of our lives. Your life isn't like that anymore.
I wish you peace and comfort in your heart. I will hold you and your family in my prayers.
Keep fighting and keep cherishing every moment.
Love,
Anne (Flynn) Porreca
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