We often hear God only gives you what can handle I just wish he didn't trust me so much.
To say things have been hectic in our lives since my last post seems like an understatement. I'll start with Brett as I am very happy to report he is doing very well. For those of you that don't know he hurt his neck and was in some severe pain and after a few rough weeks of doctors, chiropractors and many a sleepless nights. The MRI indicated surgery a must. We saw the surgeon on Wednesday and he was admitted on Thursday. The exact procedure and terminology I don't know but his C5, 6 and 7 had basically collapsed on his spinal cord. He is in a neck collar which as you can imagine looks and is extremely uncomfortable having worn it for 5 weeks now we are going back to see the surgeon next week hoping he will move onto the next step which is a soft collar for a few more weeks that only needs to be worn during activity. He has done amazingly well, was relieved of pain basically the day after surgery and once he came home really didn't need any. I have not been used to being the nurse and I believe Brett will agree I am not good at it.
On another very positive note, Luke is doing great. After threatening to put him in a bubble or lock him in his room so nothing could happen to him he is enjoying baseball and doing very well in school.
Now for my update I wish I could give you all good news however my cancer has yet again progressed. My tumor markers made quite a jump in the wrong direction so we have done another PET Scan and found new spots in my lung and liver. So we are yet again on to another drug called GEMZAR it is a weekly treatment similar to the others. I had my first and my counts went down quite a bit causing us to have to hold off a week. I just had another last Friday and again we play the game waiting to find out if I can get a hold of the cancer before it gets me. I recently heard another metastatic patient say her body just likes to make cancer and that is what is happening to me. The drugs often work for a period of time until the cancer just figures out how to get around it so we take one step forward just to be set back by two. I can only hope that eventually we can kick its ass. We went to see the doctor in Boca we have seen a few times for his opinion and he recommended GEMZAR with another drug I have had before however the concern is two fold it can be dangerous to my heart and my levels will ultimately drop with the stronger treatment. I right now have chosen to do the weekly GEMZAR with the simple hope of at least getting that in me weekly. I am not sure this is the right decision but the best one I can make right now. I have also started to work with an acupuncturist and specialist with oriental medicine needless to say I have gotten an education on herbs, QI, cleansing, teas some not so good. I drink two glasses of tea that I brew myself and my first shot at it was something out of a Harry Potter movie I could not determine if there was something alive in that cup or not so although I tried drinking it was not an option. Luke and Brett had to leave the house for a while just to recover from the smell.
We are all a part of this war and it is because of each of you that we will continue to fight for a cure. I will continue to wage war in what ever way I can so I will continue to take chemotherapy, brew teas, get accupuntured and fight for my life but I couldn't if it weren't for each of you. Your well wishes, prayers and love are just what keep us going. Thank you!
7 comments (Add yours now!):
Hey Trini, although I may not get to see you as much now that I am not at Tesoro as often, you are on the minds of my family and I. We often pray for you and your family and reflect on what an example you are to us. My daily struggles pale in comparison and I truly appreciate my world because you are in it. Thank you for helping me to ground my thoughts and thank you for being you. I am happy to here Brett is doing better and baseball is such a great thing for a boy. Keep fighing, you ARE kickin ass and inspiring so many around you.
Trini, you are and always were such a "great ass kicker!" Seriously, your blog does make me realize, that some of us (me) complain about the most stupid and petty things in life! I wish we lived closer so I could do something to help you all out. Since I can't do that, I will continue to keep you in my thoughts, and do everything I can to raise money and awareness for finding a cure for this horrible cancer! You keep strong for your family and yourself and for all of us who are pulling for you and thinking about you! Thanks for the update. You're incredible!!!!!
Hey Girl, I am so happy you've updated your blog, as I am always wondering, but not wanting to ask - - little did I know how much your family is being tested, but it also sounds like you are all stronger and taking each day as a step for these challenges. I did hear a doctor that is now trying to work on what causes the cancer cells versus how to prevent so I will try and watch and get her name. Stay strong little one, many hugs
Trini,
I don't even know how to begin , except that I am so sorry you have had to go through all of this! You have always been such a sweetheart and I am not surprised by your strength and positive attitude through this battle you have been fighting. Your son is so cute, he looks just like you! Keep doing what you are doing, fight this thing hard and know that you are LOVED by so many people! You were one of the first people I met when I moved to BurntHills and I appreciate your friendship throughout those years and when we were both living in Schenectady! My thoughts and prayers are with you and your family.
Love ya,
Lisa Richardson Ball
Trin,
Although it has been a long time since we have talked or seen each other, I will never forget how we were each others first friends moving here from different places. We had so many good times together! It was a privelege and an honor to be your maid of honor in your wedding! You have an amazing husband and a beautiful son. My thoughts and prayers are with you and your family as you fight this battle!! YOU ARE AMAZING!
Love,
Eileen
Trini,
I know its been a while, but I want you to know that we are praying for you and your always on our mind. You inspire all of us every day. Say hello to Luke from Benny. Many well wishes are always sent your way.Stay Strong
Love
Robin, Ben and Benny
Hey Trini...still figuring out how this works...you know I don't do the computer that well....but anyway..you look great...you sound great when I talk to you...so keep smilin'....Mendi
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