We will not lose our spirit!

It has been a while since my last post and things have definitely changed. Over the last few months we have continued to chase this cancer. My tumor markers continued to go up even after a good PET scan so after more tests CT scans and MRI we have found more small metastasis. Although the other spots are either smaller or stable we have found new ones. I have stopped the xeloda and am no longer involved in a study. My new drug of choice is navilbean, this one has been a doosey, I have done so well with the other chemo therapies that I didn't think this would be any different and they had said the side effects were much more mild well since I continue to defy the norm it has not been easy. My white blood count dropped considerably which has always been a potential problem but I had held my own. Not this time so we had to discontinue treatment for a while to try to increase these WBC. Friday they gave me a neulasta shot which has not been a pleasant addition to my picnic. I don't go back for 2 weeks which I am incredibly grateful for since I would like to start to feel more like myself before I try again.

With regards to the rest of the gang as always they continue to be incredible. Brett has been amazing he gives me just the right amount of support. Since we try to keep Luke as unaffected as possible when he asks for kick ball, or something that would require some energy before I can say I can't or no. My mom, sister or Brett simply step in to take my place. Luke is such a brave little guy that he tries very hard to understand something that is just unimaginable for a 9 year old.

We will continue to fight together and take the set backs in stride.